Tuesday, January 13, 2009

Life off the ventilator

Aiden is still on the SiPAP machine and doing well. The doctors, nurses and respiratory therapists were talking about moving him to a different type of CPAP machine that does less work for him because they feel he is doing so good on the current one that he actually needs less breathing intervention. One of the Respiratory therapists wanted to move him to oxygen only on a nasal cannula (no breathing for him just extra oxygen) - which is the last step before he is doing everything himself.

He is still doing good on his feedings, he is back up to the 24 calorie fortified milk at 7 mls/hr. and he was able to come off all IV nutrition, which means they finally took the PICC line (IV) out of his scalp. We are so happy to start seeing him come off things and have less wires and tubes! Unfortunately, the doctor said this morning that he had a fever last night (which may just be too many blankets since he can't control his body temp yet) and his blood test was slightly elevated which may indicate another infection coming on. They will take another blood test tonight to see if it is better or worse and start him on antibiotics if needed, hopefully if it is something they will have caught it soon enough that it won't set him back on his breathing.

Daddy gets to hold Aiden for the first time since before Christmas!

Daddy, Momma and Aiden

Aiden has also been busy developing his personality and discovering what he likes (holding hands with daddy, mommy touching his head, the pacifier and putting his hands on his face to soothe himself) and doesn't like (diaper changes, taking his temperature, his feeding tube, taking his blankets off him for any reason and of course, needles of any kind). Since he has been off the ventilator he is no longer getting pain medication/sedation and has been much more active the last couple of days, yesterday he was fussing around and decided he wanted to move his head from the right side to the left side. He picked his head up and got himself face down but needed help getting all the way to the other side - it looked like he was doing a push-up. As soon as he got his head where he wanted it, he fell asleep. He has also learned to use his voice to tell us when he is not happy. He never cries when he is being held :)


Turn the sound on for this one, we had to videotape his crying, since we didn't hear it for almost 7 weeks...we are probably the only parents who enjoy hearing their baby cry when changing his diaper - ha ha!

- Holly

5 comments:

Lisa said...

Oh, what a beautiful sound! I'm so glad that Aiden is doing well off of the ventilator. I hope he continues to improve, kicks his fever, and is ready for only the nasal cannula soon! He is getting so big and so darn cute! Keep it up little one!

Sara said...

Oh my gosh, Holly!!! That is the sweetest sound I have ever heard! It took my breath away! It brought back memories when you said he was face down like that, not being able to turn his head when he was just born. The boys did that too.

Can we talk baby shower yet???

I HEART little Aiden..

PS.. Tell Jerm he looks so SEXY with his shirt unbuttoned like that. HA HA HA HA

Kimberly said...

I never thought I would want to hear a baby cry either. You are right, that is the sweetest sound. What is the tube that is still going into his mouth?
I am so happy for you two and for Aiden.

Anonymous said...

The sweeetest sound in the world. I love the way he settled right down when Daddy held his hand! We are so proud of his little fighting spirit. We love you baby Aiden!! Nana and Papa

Anonymous said...

I'm very happy to hear his little voice! What a sweetheart. Our prayers are working. Can't wait for the next update.